The fact that anyone cares about survivors is really good news. Until relatively recently, there were not enough cancer survivors to support such a research and support effort. Now many of us are living well and long enough to experience possible side effects from our treatments--and certainly to experience our lives in a different way.
This is from the Young Survivors Coalition. They are conducting a survey to learn more about our needs and then advocate for us. Please take a moment to read and help:
Long-term Survivors- Meeting the Changing Needs
Long-term survivors of breast cancer have various interests and face unique challenges in their lives well beyond treatment. While some strive to manage lifelong physical and emotional side effects of breast cancer, others may look to connect through education or activism. There is growing attention to these issues, yet there is still a gap in information and support for those diagnosed at a young age.
Recognizing the need to increase information for young women, we are creating a resource for those who have completed treatment for breast cancer five years ago or longer. And we want your help! We value the input of YSC's community and want to know what information you think is most important to include in a long-term survivor resource guide.
If you were diagnosed with breast cancer as a young (<45) woman and finished treatment five or more years ago, please take a few minutes to participate in our anonymous survey. Your thoughts on follow-up care, management of health and side effects, and how you want to be involved will help us to develop a resource for countless women facing the same questions and concerns that you may have.